Today Al took off from work to spend a daddy and daughter day home with Miss Olivia. This gave me time to get some things done. I got my flu shot finally. I was able to finish up some banking stuff and come to work without my little gem and finish some work up. Therefore a few extra minutes to blog and catch everyone up on the girls.
It is hard to believe that Lilah and Olivia are 7 weeks old. It is harder to believe that Lilah is still in the NICU. As hard as life is right now, we have a solid schedule and that makes things easier. We were told yesterday that Lilah is growing out of the "preemie" phase and is really wanting interaction and to be held. I won't lie, hearing that broke my heart into a million pieces. I spend hours with her each day, as done Al. We hold her and talk to her. I kiss her head and tell her stories, but she is needing so much more right now and it is impossible to give it to her while she is in the NICU and we still have Olivia at home. I am thankful that my little girl won't remember these early days. I am thankful that we can make so many memories with her when she comes home. As of today she is weighing 4lbs 5oz. She is only taking about 3% of her feedings through a bottle. This is what will keep her in the NICU longer. I spoke with the one of her doctors last night and they think if she continues to gain weight and keep the fluid off her lungs that she is definitely on the track for coming home. Then her heart surgery will still be planned for 2-3 months. Of course the biggest question is when? No one knows. I just want her to know that she is so loved.
Now Lilah has a room mate and it is absolutely heart breaking! The little girl is 4 months old and has been in the NICU since birth. She has went through 3 surgeries and is on a vent. still. She opens her eyes and turns red daily. Her monitors are constantly going off and the nurses are always over there trying to help make her more comfortable. As heart breaking as this is, she doesn't have any family that cares about her. The nurses buy her clothes and toys to keep at her bedside. They talk to her and stroke her hair. It kills me! I want to go over and touch her, but she never formed an attachment and doesn't like anyone to touch her or show her affection of any kind. Plus HIPPA doesn't allow to me to have interaction with her. I just wonder if her parents feel bad? Do they feel guilt? Do they wish things were different? At these moments I realize that even though I have a sick daughter, she is so lucky and I am so lucky. She will always have our love and protection.
Here is a picture from yesterday. I decorated her "apartment" so she could get some stimulation.