Well after I posted yesterday about my knee and headache, things took a turn for the worst and I ended up in the ER. The clinic called and was worried I had developed a blood clot in my knee because of the pain. My headache started getting much worse and by the time we got to the ER I couldn't even keep my eyes open because I was in so much pain. After three hours of sitting out in the hallway waiting on a room my husband went and found the director of ER and told him what was going on. I do love the fact that my husband works with all the directors at the hospital. Thankfully within twenty minutes he came down and made them get me in a room and start an iv with pain meds. I started throwing up pretty bad and the pain meds would only work for about 20 minutes and the migraine was back full force. Thankfully I didn't have a blood clot and they kept me there until 10 last night trying to manage my pain. Finally I told them I just wanted to go home. So he sent me home with pain meds and zofran. Today the infusion clinic called to see what happened. I explained to her about the migraine and said I probably don't want anymore IVIG treatments done. I can't go through this once a month. She is going to call Dr. Kims office and see if they can pre medicate me the next time with iv zofran, pain meds and benedryl to see if that helps the side effects at all. I am feeling much better tonight. I had a very high fever when we got home from the ER last night and it finally broke about six this morning. I am not going to lie, I had a very rough day yesterday. I usually try not to complain, but this absolutely sucked. My next infusion was set for January 31st which is a Friday. I might give it one more shot since it will be followed by the weekend. If I have to go to ER again at least I won't miss three days of work like I did this time. I need some time to think about it. I hate acting like a big ole baby about this and I know I should just suck it up and try again, but I am not looking forward to going through this again or ever for that matter.
OH my goodness! I am so sad you went through this. Be careful if you decide to move ahead with another treatment. I am worried. This whole process just shouldn't be this hard. I just shouldn't. Take care of yourself T.
ReplyDeleteYikes, that is terrible! I'm so glad you're feeling better but you're absolutely right, you don't want to be going through that on a regular basis. I really hope they can figure out an alternative for you! Feel better soon.
ReplyDeleteOmg that is scary. Thank god you are okay. Feel better and take care of yourself:)
ReplyDeleteYou are NOT being a baby! That is horrible. I really hope that next time goes smoother because going through that again sounds like a living hell. Take care of yourself and get some rest.
ReplyDelete