Lilah Update

Yesterday was such a stressful and trying day. There were many tears. Many. One hour before surgery, Lilah's kidneys started working and her levels are started improving. They called off the surgery. Al and I were SO relieved. Seeing all the IV's in her just made me sick to my stomach. My poor girl has been through so much in her short two weeks of life. I look at her and see so much of me in her. She is SO strong! By this morning her levels were all improving dramatically and her blood pressure was back within normal ranges. They did schedule her for another echo of the heart and u/s of her kidneys to make sure no more damage was done from the medication. She was smiling and moving all around.

Olivia is still doing very well and as of today weighed 3 lbs 6.9 oz. The nurse mentioned she might be losing her IV within the next day and then she will only have her feeding tube. She is such a mellow happy baby and both of them are so beautiful. As of tomorrow my girls will be 2 weeks old. I can't believe they have been in the NICU for two weeks already. We have many weeks to go, but I want them to be healthy and strong before coming home. No rush.

Breast feeding isn't going to great. It is very hard to get supply for two babies. I am pumping about 1 1/2 - 2 ounces per pump and that is not near enough to support the girls. Right now they are on my milk and donor milk + fortifiers to help them gain weight.  At first I wasn't happy about them on donor milk, but now I don't care. Whatever is the best thing for them.

I also want to thank everyone who has reached out to me privately. I haven't been able to respond to all the emails, text messages, but truly am overwhelmed by the support we have received.

Hopefully I will have some pictures to upload tomorrow. I didn't want to share pictures of Lilah while she was going through everything for the past few days.