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Thursday, January 16, 2014

Consult with Dr. Kim

Last week I received an email that Dr. Kim wanted to have a phone consult with me regarding my IVIG treatment and the reaction I had. I guess the main problem was the headache I had a week leading into the infusion. She told me to never go into a infusion with a headache, that it will only make things worse. I guess the proteins build up in my vessels and people who suffer from migraines already have bigger vessels which cause water retention of some sort. The proteins will trigger a migraine for those of us already suffering with on going headaches etc. They are going to cut my infusion from 25 grams to 5 grams and lengthen the infusion to five hours and split it up so I have an infusion and the other half of infusion a day later. They will also add saline to help dilute the proteins some, benadryl is suppose to help with the reaction and I am to start my Prednisone two days before the infusion to also help with reaction. My post IVIG blood work came back and my TH/1TH/2 Cytokines are still elevated. I asked if that was common after a treatment. She said yes because they are a smaller cell verses the NK cells and take multiple treatments to get down. She said they are a lot slower verses the NK cells which can go down after one treatment. So I should be able to see a difference in a few treatments.  Today I am 9DPO, if I get pregnant this cycle I will immediately need to have another infusion and also double my steroids and double lovenox. If I am not pregnant this cycle, I will have my next infusion done around CD13 of next one. I was pretty optimistic about this cycle, but at 9DPO and BFN I don't see this one worked. As someone with only a 10-11 luteal phase, it should happen today or tomorrow. I don't feel pregnant though. Either way the good news is I can go forward with another treatment. I won't lie, I am nervous because I don't want to go through that pain again, but I am hoping the changes we are implementing will make a difference. Only time will tell. The most important thing to me right now is we are trying and doing everything possible within our control and we are. 


11 comments:

  1. Praying that the next infusion goes much more smoothly with less side effects. Ugh, what a hard battle to fight. I couldn't even imagine! I am hoping that this was your cycle and you BFP is just a late bloomer. If not, I am super glad you have a game plan. At least for me, a game plan always makes me feel a little better when venturing on to the next cycle... Praying sweet friend! xo

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    1. I absolutely agree about game plans. They keep my sane :)

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  2. Hoping the next one goes smooth for you. Hopefully by breaking it up that makes a world of difference, at least in my thinking it would.

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    1. My doctor thinks it will and also cutting the strength down. I am very hopeful :_

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  3. Oh, that's great there are that many things to adjust to possibly help! I had no idea. That is a solid plan and makes sense in my head. I really hope the next one goes better and you can immediately feel awesome! and pregnant!

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    1. I am going to stay positive and keep telling myself that it has to be better than the last one :)

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  4. Dr. Kim definitely seems to have a lot of answers and a solid plan. Here's hoping the next infusion is a hell of a lot easier on you!

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    1. I really like her. I will let you know how it goes :)

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  5. Great plan and Dr. Kim looks to be the right person for you! I am praying for a better infusion and a baby in 2014!!

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  6. I feel really behind and out of the loop! It sounds like Dr. Kim is really on top of things.

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