Pages

▼

Wednesday, September 25, 2013

Follow Up with Dr. Kim

First of all, please excuse my absolute ignorance on the following. We spoke with Dr. Kim for well over an hour and it was a lot of information to take in. She is suppose to send me a summary of all my tests, but I will go ahead and tell you the things I do remember.
I have high and/or elevated Natural Killer Cells, T Helper 1 &2, ANA, Pie 1 gene mutation, Antiphospholipid Antibody , IGAA
There is no way that without treatment I can keep a pregnant. I was told by Dr. Kim that my chances of heart disease are 5 times more likely, and if we do get pregnant my chances of pre-clampsia and pre term labor also go up pretty drastically.
She has suggested the dreaded IVIG and I am waiting to see if my insurance covers this medication. It is about $3,000 per infusion and we would also have to fly to Chicago to have it done the first time.
Lovenox starting on cd6 through positive pregnancy test or period.
prednisone- starting after ovulation and not sure how long
Metanex- Prescription Folic Acid, b6, b12
Metformin- 500mg every other day and then 500mg twice a day
D3-1000mg daily
Fish oil
Vitamin E -400mg daily
Aspirin 81mg daily
Endometrium for 10 days after ovulation
She said that I am one of her more severe cases and recommends the IVIG. Without insurance coverage we just can't do it. Have a lot of thinking right now and need to decide where to go from here. I will share test results on my blog when I receive them from her.

I am definitely down in the dumps this afternoon. I need some time to process and make the best out of this situation. 
at

10 comments:

  1. Non Sequitur ChicaSeptember 25, 2013 at 3:25 PM

    Crossing my fingers that your insurance will cover the IVIG!!!!

    ReplyDelete
  2. LauraSeptember 25, 2013 at 3:36 PM

    Oh, I hope the insurance helps. That is a lot to take it. Thinking of you today!

    ReplyDelete
  3. UnknownSeptember 25, 2013 at 3:41 PM

    Big hugs!

    ReplyDelete
  4. AuntMimiSeptember 25, 2013 at 3:44 PM

    Hugs to you. That is a lot to think about but it sounds like Dr. Kim was very thorough and now you know what's going on.

    ReplyDelete
  5. Gypsy MamaSeptember 25, 2013 at 4:36 PM

    Sorry T. I am sending you a huge hug. I know this is a lot of information to process right now... take your time and I am hoping for the best!

    ReplyDelete
  6. UnknownSeptember 25, 2013 at 8:09 PM

    I am so sorry Toni for these extra hurdles. :( Praying so hard the Insurance will cover the treatment.

    ReplyDelete
  7. Ali WSeptember 26, 2013 at 7:14 AM

    T, I like that she has a plan for you, I do not like that they plan is depentant on insurance and otherwise very expensive... I realy am hoping that they can help you and you can get the treatment you so very much need!!

    ReplyDelete
  8. Mrs. LostSeptember 26, 2013 at 10:14 AM

    SO much to process... (((hugs)))

    ReplyDelete
  9. AnonymousSeptember 26, 2013 at 7:00 PM

    I am sorry to read this. I know how badly you want more children but I think this is a sign.

    ReplyDelete
  10. AmberSeptember 26, 2013 at 8:07 PM

    The good news in all of this is you have answers that allow you to move forward planning the next steps. I hope the insurance comes through for you. The other good news is that there are several others that have gone before you, with similar issues, and have experienced success. I know it's stressful, but hang in there! I know you will figure out your next plan and make this happen!

    ReplyDelete